If you read my last post, you’d know that I have been taking advantage of some really great opportunities lately! One of which, was participating in an interview with NPR about The Fault In Our Stars (perfect timing since I just finished my review of the book and saw the movie). NPR’s Nancy Shute wanted to write an article comparing the way that YA/teen life with cancer is shown in TFIOS to what it is like in real life, so they contacted my hospital. They gathered a few patients who fit the age group and had read the book in order to get their perception. I was one of those patients, and it just so happened that I only read the book so that I could make those comparisons on my own blog!
Of course, I am very grateful for having had the chance to participate in this interview. It is exciting to me that a larger platform like NPR would do a story like this, drawing attention to the fact that what we see on TV and in movies is not always the truth, especially when it pertains to cancer. You can read the NPR article, written by Nancy Shute, here. If you took a moment to read it, you might notice that I did not have an answer to every question. In fact, I was not asked every question that they included, but that doesn’t mean that I don’t have an answer! So I thought that it would be fun to answer all of the questions here on my own blog.
So is the movie version of cancer anything like cancer in real life?
I was weary of the movie because blockbuster cancer movies are typically unrealistic and over-dramatic. For example, they hang giant bags of horrible looking red chemo all over, people are constantly vomiting, and that’s just not how it is. I was so relieved and surprised to see that they didn’t do that! I feel strongly about this because I had a hard time convincing myself to sign the papers necessary so that I could begin chemotherapy because the only perceptions of chemo and cancer that I had were from movies and television. My nurses literally had to tell me, ‘If you’re thinking it’s like what you see on TV, it isn’t.’ I had this warped perception of how the chemotherapy would affect me. I don’t want other people to feel that way.
Truthfully, the movie doesn’t show much of what cancer, in terms of chemotherapy, is like. Neither of the two main characters are going through intense chemotherapy for the majority of the movie, this is also why they have full heads of hair. Instead, the movie focuses on life after cancer, or at least, a more stable prognosis. It shows more of the mental and emotional struggles that us cancer patients face, especially at the teen/young adult age. Of course, everyone’s experience with cancer (mentally, emotionally, physically) is different, but I thought that this was a good, realistic representation of what someone could go through.
Hazel and Gus joke about “cancer perks” and the “stereotypical Disney wish.” Did you get those?
Being over the age of eighteen at diagnosis I did not get a Make A Wish, Children’s hospital or no. To be honest I didn’t even know that everyone got a wish. Also, I was in Disneyland the week before I got diagnosed, so I don’t think I would have asked for that even if I did get a wish. I do really relate to “cancer perks,” it is something I say and hashtag on my Instagram posts. I think those kinds of sarcastic, ironic remarks are just part of being a young person with cancer!
Loneliness is a real theme for Hazel, the idea that she’s so isolated from regular teenage life. Did that happen to you?
When I got diagnosed, I was living in a different state than my family. I was just beginning my life and building my own community. Deciding to get treatment back at home with my family meant leaving my best friends and my independent life behind. I was never alone, but I definitely felt and still feel that I don’t have that social aspect in my life here, not with people my age. I don’t even know where to make friends now that I am not in school. I don’t feel like anyone isolated me on purpose, but I do feel isolated sometimes watching my friends go out and have fun without me. I know that they are still my best friends and that I will be able to get back to them soon.
Let’s talk hair. Did it bother you that Hazel made it through the movie with a full head of hair?
This did not bother me. People who go through chemotherapy do not always lost their hair. I wouldn’t have expected Hazel to be bald because she is not going through high dose chemotherapy, she is on a maintenance drug. I have begun growing my hair back since starting maintenance chemotherapy (low dose). It would have been unrealistic, in my opinion, for her to be bald.
Do you think the movie will help teenagers and adults be better prepared for their own health crises?
When I was first diagnosed, I wracked my brain for anything that I knew about cancer, leukemia and chemo. Most prominently I thought of A Walk to Remember, a story about a girl who had leukemia, she dies. Then, My Sister’s Keeper, oh wait, she dies. There were a few TV shows I remembered like Sex and the City, Samantha gets breast cancer and is seen with a giant bag of bright red chemo going in to an IV, yuck. Also Parenthood, Christina gets breast cancer and spends weeks in front of the toilet barfing her guts out. If anything, these things made me more afraid than I already was for this new chapter in my life. I figured I could either die or wish I was dead from overwhelming amounts of nausea. So no, speaking from my own experience, I do not think that The Fault In Our Stars would prepare anyone for a health crisis. It is about a girl who is going to die and a boy who dies. And when you are sitting in your hospital bed thinking, what is going to happen to me? you are not going to think of Hazel or Gus and feel comforted. You are going to push them out of your mind and think about how strong you are, how you are different, how you can do this and that whatever happens you will be okay. I don’t know that anyone will ever be prepared to hear that they have cancer.
**I would like to note that I do not intend for this post to symbolize any kind of negativity towards NPR, Nancy Shute, or her article. I had a lovely conversation with Nancy and am so grateful to her for allowing me to participate as well as for touching on this subject matter at all! I just thought this would be a good follow up post for my blog.**
Thanks for checking this out everyone, would love to know your thoughts/answers to these questions too! Comment below if you’ve got something to add!